NUTRITION FOR ENDOMETRIOSIS

 comprehensive, integrative approach to endometriosis with a variety of highly trained health professionals appears to offer the most effective care.  Expert excision surgery, pelvic floor physical therapy and dietary therapy among other integrative treatments all play very important roles in the holistic care of endometriosis patients.  While diet is neither the cause of nor the cure for endometriosis, it often makes a significant impact in the way we feel.  Today we will explore the impact our food choices have on how we feel and some of the most common food triggers among endometriosis patients.

It is important to remember that dietary change isn’t an overnight process and that everyone’s needs are different.  One patient’s food triggers will be different from another’s and other food sensitivities exist that are not discussed in this article.  While it may take a little trial and error, some time and some effort, many find that eating an overall anti-inflammatory diet while avoiding their personal food triggers makes a significant improvement in their quality of life.  Symptoms of other conditions that endometriosis patients often additionally suffer from such as interstitial cystitis, polycystic ovarian syndrome and irritable bowel syndrome also tend to improve with dietary therapy targeted specifically to each disorder.

Most people are aware that inflammation causes a variety of symptoms, most noticeably significant pain.  What many people aren’t aware of is that what we eat can directly increase or decrease inflammation and associated symptoms depending on our food choices.  This is excellent news as it gives us the opportunity to take back some control of our health and pain, something that all too many endometriosis patients feel is out of their hands.

But which foods are inflammatory, increase pain and increase the risk of countless inflammatory lifestyle diseases?  Processed, refined and synthetic foods are the number one food category to avoid.  Packaged and prepared meals and snacks, soft drinks, fried foods, smoked and/or processed meats, breakfast cereals, baked goods, white flour and refined grains, sugar/corn syrup, soy, artificial sweeteners, poor quality fats (more on this later) and a variety of additives, colours and chemicals all contribute to the inflammatory and toxic burden on the body.  Avoiding these foods and sticking with fresh, unprocessed ingredients (organic whenever possible) with a strong emphasis on fresh produce forms the backbone of any anti-inflammatory diet.

Gluten is a protein found in glutinous grains (including wheat, rye, barley, spelt, kamut, triticale, graham, bulgur and controversially oats) that many people with endometriosis have difficulty with. In fact, a recent study found that 75% of the endometriosis patients studied had reduced pain while following a gluten-free diet.1 It can be very difficult to digest, leading to increased bowel symptoms, bloating and increased pain.  Some people find the problem is specifically wheat and tolerate other glutinous grains just fine.  The key to going gluten-free is to choose foods that are naturally gluten-free, like brown and wild rice, quinoa, millet, amaranth, legumes, sweet potatoes and squash instead of processed gluten-free bread, pasta, baked goods, breakfast cereals, bars and crackers which are typically highly refined and fall into the inflammatory category.  Also be aware that many condiments contain hidden gluten, so read labels or better still make your own salad dressings, sauces, salsas and marinades to avoid gluten and other inflammatory ingredients.

Soy has exploded in popularity over the last fifteen years or so.  Although soy is often built up to be a powerful super food, in reality it does not live up to the media hype.  Contrary to popular belief, soy really hasn’t been a staple of the human diet for all that long.  It is a very tough plant that was long thought to be inedible and traditionally was only consumed in fermented forms such as miso, tempeh, natto and Nama Shoyu in condiment sized portions.  Raw, unfermented and highly processed soy is extremely difficult to digest and quite inflammatory.  Furthermore it contains phytic acid, an “anti-nutrient” that inhibits absorption of a variety of essential minerals and acts as a goitrogen interfering with thyroid function.  Soy is also high in isoflavones, a natural type of plant estrogen that can increase estrogen levels in humans.  This is particularly concerning for many endometriosis patients as it can be a potential dietary trigger of pain.

Modern soy is one of the most heavily sprayed crops on the planet and is almost always genetically modified.  In fact as soon as GM soy hit the mass processed food market in the hidden in processed foods around 1997 severe peanut allergies in children jumped 200% in five years.2 A recent study demonstrated that pigs fed a diet of genetically modified soy had an average of 25% heavier uterine weight and were 2.6 times more likely to have severe stomach inflammation than pigs not fed genetically altered foods.  These pigs- both female and male- were also found to have reduced fertility.3

This type of soy is commonly listed as soy protein, soy isolate, defatted soy flour, soy lecithin and soy oil,  in a variety of dairy substitutes and meat analogues, tofu, soy sauce/tamari, condiments, packaged and premade meals, side dishes, soups and snacks, baked goods, crackers, protein supplements and meal replacements, baby formula and desserts.  If one tolerates some soy, I recommend sticking to occasional condiment-sized servings of 100% certified organic and non-GMO products that are traditionally fermented such as miso, natto, tempeh, tamari and Nama Shoyu.

Dairy, similar to soy can be quite inflammatory, can contain significant amounts of hormones and can be quite difficult to digest for many leading to an exacerbation of symptoms. Lactose is a sugar found in milk that most teens and adults have difficulty breaking down, which leads to pain, bloating and other GI symptoms when bacteria in the intestine start eating the undigested sugar and fermenting.  Casein is a protein found in milk which can trigger severe allergic reactions or more commonly intolerance symptoms similar to those of lactose intolerance.  An unhappy bowel can irritate endometriosis lesions on the bowel wall itself or elsewhere in the pelvis leading to increased pain, bowel symptoms and nausea.

Unfortunately much like soy, dairy has become increasingly adulterated over the years.  Cows are routinely fed antibiotics which in addition to the growing problem of antibiotic resistance can over time lead to IBS-like symptoms.  In addition, dairy cattle are often injected with natural and genetically modified growth hormones.  Some of these hormones elevate IGF-1 levels causing cells (including potentially some endometriosis cells) to grow and become more active.4 This is in addition to the cow’s own natural hormones, increasing the body’s overall estrogen level and potentially increasing pain and symptoms.  Regularly consuming low fat and fat-free dairy products has also been strongly associated with ovulatory infertility.5

Choosing non-dairy alternatives such as unsweetened almond, coconut or rice milk, yogurt and raw nut cheeses are good options.  Some people tolerate some organic grass-fed goat or sheep’s dairy (particularly unsweetened low fat yogurt or other fermented products), so consider giving it a try if cow’s dairy is a problem for you.  It is important to ensure one is getting enough calcium when eliminating dairy, so adding more high calcium non-dairy foods such as green leafy vegetables, blackstrap molasses, raw almonds, BPA-free canned wild salmon with the bones, raw sesame seeds/tahini and broccoli and possibly a quality calcium and magnesium supplement to your daily diet.

Dietary fats and oils are probably the greatest area of confusion when it comes to nutrition.  There is so much misinformation out there and yet getting the right fats and oils in the right balance is critical in the management of inflammation and overall health.  The right oils will keep your cell membranes flexible, your hormones balanced and help to keep inflammatory hormones and substances under control.

Unfortunately the most commonly consumed fats and oils are highly refined, highly processed, profoundly damaged and extremely inflammatory.  Yes, those “healthy” vegetable oils such as canola, safflower, sunflower, corn, cottonseed, and soy oils and “heart healthy” non-hydrogenated spreads are highly inflammatory, increase pain, reduce fertility and increase your risk of death due to heart disease, cancer and other serious diseases.6  During processing these exceedingly fragile oils are exposed to excessive heat, light and air, many chemicals to degum, deodorize and bleach the oil and then packaged in large clear plastic bottles where they continue to degrade under the light.

To add insult to injury, because they are so processed many use these oils to cook over high heat, damaging the oil even more.  Furthermore these oils generally contain far more of the often inflammatory omega 6 than they do of the anti-inflammatory omega 37 which increases systemic inflammation and pain.  Trans fats, such as hydrogenated or partially hydrogenated vegetable oils, margarine, shortening and some frying oils should also be avoided completely.

What to eat instead?  Choose more oils and foods higher in omega 3; first cold pressed raw organic flax, hemp, chia, walnut or pumpkin seed oils in small dark glass tightly closed bottles that can be used quickly and store in the fridge.  Use these oils in only cold applications such as salad dressings, dips or added to smoothies.  Raw ground chia, flax, whole hemp hearts, walnuts and pumpkin seeds can be added to salads, raw nut butters, smoothies, trail mix or on top of main dishes.  Wild salmon, herring, sardines, anchovies, Atlantic mackerel and some sea vegetables are excellent sources of omega 3.

First cold pressed extra virgin olive or avocado oil stored in small dark glass bottles in a cool dark place that can be used quickly are great in cold applications and in cooking up to medium-low heat.  Saturated fats such as first cold pressed extra virgin pure coconut oil, organic grass-fed butter or ghee can be used in moderation and are the most heat stable of all the fats and oils so they are a good choice for cooking.  A high quality daily fish oil supplement (such as Nordic Naturals or Nutritional Fundamentals of Health) may be considered.

Red meat is a problem for some of the same reasons as dairy.  It is also can be quite inflammatory, difficult to digest and slows digestion time leading to bowel symptoms.  Livestock in North America are typically fed an unnatural diet of corn, other grains or “cattle feed” instead of their natural grass diet which increases the amount of omega 6 relative to omega 3 in the meat significantly.  They are also typically sedentary which increases the amount of fat and potentially hormones in the meat.  If you tolerate some red meat in moderation, choose lean cuts of certified organic, free range and grass-fed meat.

Soluble fibre is important to keep food moving through the bowel smoothly and helping the body to naturally expel excess hormones instead of reabsorbing them to be continuously recycled in the body.  Unlike insoluble fibre, soluble fibre dissolves into a gel in the GI tract to keep food moving without excess bulk or scratchy irritation which can increase pain.  Foods such as apples, pears, plums, legumes (beans, lentils and peas), whole oats, okra, citrus fruits, ground raw chia and flax seeds and psyllium husk powder are good sources of soluble fibre.

Alcohol is extremely inflammatory, hard on the liver and is an extremely common dietary trigger of pain.  Consider eliminating alcohol altogether or only indulging in a drink on special occasions.  Caffeine also often increases pain as well as PMS symptoms, although some women can tolerate small amounts of caffeine such as in green or white tea or a small cup of coffee.  Try eliminating coffee, soft drinks, energy drinks, black tea, chocolate and other sources of caffeine for a month or two and see how you feel.

So how does one transition to an anti-inflammatory diet and incorporate all of these habits into their daily life?  The first step is to start working with a qualified nutritionist who has a strong understanding of endometriosis and will guide and support you through the process.  This helps to ensure that you are changing your diet in a healthy way and getting all of the nutrients you need to be healthy while providing an excellent resource for alternatives and meal ideas.  It is very important to remember that this is a process that will take some time, effort and commitment and it won’t happen overnight.  But that being said, diet changes often prove to be a very important component in many endometriosis patients’ overall care.  They feel much better in terms of endometriosis symptoms, energy and overall well-being; results that are very much worth the effort.

JUST BECAUSE

JUST BECAUSE I smile does not mean I am not in pain and raging a war with my insides.

JUST BECAUSE I am out of bed does not mean I don’t feel body pain, nausea, Sciatic down my legs, headaches, feel depressed, sad, moody, happy, irritated, grumpy, happy again with in mins of each other.

JUST BECAUSE I am eating does not mean I am not forcing each bite in my bloated heavy stomach. Worried if I will get gas, cramps, bloating and how I will keep it down. Will my endo belly appear will I pay for all this tomorrow with running to the washroom or completely be constipated.

JUST BECAUSE I Go about my daily routine with my head held high does not mean That everyday isn’t hard and everyday brings new complications, stresses, new pains, that every decision I make can be either a positive or negative. That my stress level and anxiety can be triggered at any moment where I feel loss of control and feelings of rage or sadness wipes across me like a cold sweat. Everyday struggle with our inner demons.

JUST BECAUSE I walk around laughing having fun, going out to parties, events, family gatherings does not mean I am not crying on the inside. Unable to stand for too long or worrying about my horrible hot flash, how I look on the outside as I am screaming for help on the inside. But remembering what your parents taught you about manners and yelling and being rude at parties. Trying to keep cool though you want to hide from these faces who see you as healthy and looking great, Not understanding the condition that has you kidnapped. Hearing whispers as to why your not pregnant as you hold your sisters newborn baby in your hands feeling the impending doom of not being able to ever be a mother to your own.

JUST BECAUSE for some strange reason I feel the need to put my mans needs before my own and please him with sex when he wants it. Doesn’t mean I don’t lie there holding my breathe, biting my lip, squeezing the blanket in a ball in my fists. pressing my head into the pillow tears flood my face hope he doesn’t notice. The intense pain, feeling my insides are falling out, The tearing pulling heat inside my endo spot. Burning as he moves back and forth to his comfort I hope it will be over soon . Faking moans when I want to scream in pain. Fake it to please him and get it done! its our duty as women as wives girlfriends its apart of the deal  Please I think not! Why must it be put on us to please our men they have a hand! Leaving us feeling dirty, guilty leaving us to our wondering thoughts Did we please them?, were we good enough?  Meanwhile we cry on the bathroom floor or lay in bed curled in a ball hoping the pain goes away fast enough that we can get up and deal with the days ahead and the struggle that doesn’t give up!

No one else will suffer

By Lisa Fipps managing editor editor@kokomoperspective.com | PostedDec 10, 2009

Kristi An Rose suffered with endometriosis for 12 years, from 1997 until May 7, 2009 – the day she put a gun to her head and pulled the trigger.

 

It was a tragic ending of a life that held great promise, a life that is dearly missed, a life that could have been different if more in the medical community knew how debilitating the condition is, knew how much those with it suffer, and knew to take it more seriously, according to her mother, Sherill Rose Hill.

Nightmare begins

In school, Kristi was very outgoing. After graduating from Northwestern High School, she was a workaholic, said Sherill. Kristi worked several jobs and loved it. She always loved art, especially photography. But at the age of 17, she was already having medical problems.

“Kristi had really bad pains in her abdomen during her periods,” Sherill said. “It wasn’t your typical cramps. It was abnormal. I took her to a couple of doctors. They all said, ‘She’s a teenager trying to get attention.’ That wasn’t Kristi at all. I ended up taking her to Indianapolis to Dr. David McLaughlin of Women’s Specialty Health Centers. He said, ‘I think I know what’s wrong.’ He did a laparoscopy on Feb. 12, 1997. He said she had endometriosis. She was so thrilled to know what was going on because everybody had said she was making it up. She knew she wasn’t.”

Endometriosis “occurs when tissue like that which lines the uterus (tissue called the endometrium) is found outside the uterus – usually in the abdomen on the ovaries, fallopian tubes, and ligaments that support the uterus; the area between the vagina and rectum; the outer surface of the uterus; and the lining of the pelvic cavity,” according to the Endometriosis Association.

According to the Cleveland Clinic, symptoms of endometriosis can include but are not limited to the following:

•extremely painful (or disabling) menstrual cramps; pain may get worse over time

•chronic pelvic pain (includes lower back pain and pelvic pain)

•pain during or after sex

•intestinal pain

•painful bowel movements or painful urination during menstrual periods

•heavy menstrual periods

•premenstrual spotting or bleeding between periods

•infertility

A few months later, Kristi had a microlaser laparotomy to vaporize the endometriosis.

For the first time in years, she felt better. The pain was gone. She was happy. So was Sherill. It’s excruciating to watch your child in such pain, Kristi’s mom said.

But then the endometriosis came back.

“The most recent studies have shown that endometriosis recurs at a rate of 20 to 40 percent within five years following surgery,” according to the Cleveland Clinic.

Kristi’s came back in less than a year. She had another surgery to vaporize more of the tissue. It returned again.

In October 2000, Kristi and Sherill flew to Oregon to see a specialist. That doctor performed an oophorectomy, removing her left ovary. They found out that her fallopian tubes were packed with eggs. The endometriosis had prevented them from dropping down to the uterus monthly. Some would ask why Kristi didn’t have a hysterectomy. Doctors were hesitant to do that considering how young she was, Sherill said.

Besides, a hysterectomy is not a cure. Currently,  there is no cure for endometriosis. Even having a hysterectomy or removing the ovaries does not guarantee that the endometriosis areas and/or the symptoms of endometriosis will not come back.

After the surgery in Oregon, Kristi was still in pain. “That was a big let down,” Sherill said. “We thought it would be great. We thought it’d be all over.”

Kristi was in constant pain. Her mom searched the Internet trying to find someone who could help. In 2003, Kristi and Sherill headed to Birmingham, Ala., to see a specialist at the Chronic Pelvic Pain Treatment Center.

“When we drove there, we had big hopes,” Sherill said. “By the time we walked out of there, they’d diagnosed her with five different problems – all related to endometriosis.”

Severe pelvic congestive syndrome, vulvar vestibulitis, pelvic floor myalgia, irritable bowel syndrome, and abdominal wall trigger points.

Kristi also suffered from severe interstitial fibrosis of the bladder with chronic interstitial cystitis, a condition that results in recurring discomfort or pain in the bladder and the surrounding pelvic region.

The autopsy report gives a glimpse of just have pervasive the endometriosis was in Kristi’s body. It was on her liver. It was on her bowels. It was on her right kidney. Her right ovary had multiple cysts with large “chocolate cysts” (cysts that form when endometrial tissue invades an ovary), including one that had ruptured right before her death. Her fallopian tubes and right ovary had adhered to her uterus and pelvic wall. There were multiple fibrous pelvic adhesions.

“The doctor who did the autopsy said she had more endometriosis than anyone he’d ever seen,” Sherill said.

To say she was in pain is an understatement.

Kristi gave up. She was tired of doctors. She was tired of hospitals. She was tired of the pain.

In 2006, Sherill’s husband, Kristi’s stepfather, Mike Hill, developed cancer. Sherill was torn between helping her daughter who was suffering and her husband who was suffering.

“I told her, ‘We’re going to find something for you,’ ” Sherill said. She pleaded with her daughter to hang in there until they found someone who could help. By then Kristi had no insurance. Her mom and stepdad helped pay for her medical expenses. Kristi hated that. She was independent. She wanted to take care of herself.

On April 16, 2009, Mike Hill died.

“Kristi said, ‘Look at him. He’s at peace. I would love to be at peace,” Sherill said.

She began to worry about her daughter. She was sinking deeper and deeper into depression. A letter Kristi wrote on April 4 details her thoughts: “I am so tired of the pain. It is enough to drive someone crazy. Having constant pain all the time is enough to want to give up. Enough to want to put my fragile body to rest. My body can’t take any more. My brain is past the breaking point. My heart is broken. God, my heart is broken.”

 “She was having grand mal seizures and pretty much bed-ridden then,” Sherill said of her daughter. “I got an uneasy feeling,” Sherill said. “So I hid the gun we kept in the house. Three days prior to her dying, she said, ‘I don’t want this anymore. They can’t fix me.’ I begged her. I said, ‘Please, let me see what I can find out. We’ll find something. She said no. ‘You’re not going to take me to another doctor, who will just take your money and say, ‘Well, we don’t know what else to do for her.’ ”

On May 7, 2009, Sherill was on her way home from a short trip to Kentucky and called her daughter.

“I told her I was almost home,” Sherill said, tears flowing down her cheeks. “She said, ‘I want you to remember one thing.’ I said, ‘What?’ She said, ‘I love you very, very, very, very, very, very, very, very, very, very much, Mom, and she just kept saying it. And I said I love you very, very, very much, too.’ ”

As Sherill drove home, Kristi searched the house and found the gun. She went outside to the back yard. She put the gun to her head. She pulled the trigger.

“When I got home, the police were in the yard,” Sherill said, sobbing. “I couldn’t pull into the driveway. My son, Tom, was there. I have another son, Michael. Tom had been in the house, and the neighbors came and got him. They said, ‘Your sister’s lying in the backyard.’ My son went out and got her. That’s just been very hard for him. He said, ‘I held her and she wasn’t talking.’ He said he kept thinking, ‘I gotta get this fixed before mom gets home.’ When I pulled up in the yard, as soon as I got out of the car, Tom grabbed a hold of me so tightly I could hardly breathe. He said, ‘Kristi shot herself.’ He held me so tight and he wouldn’t let go. I said, ‘Is she alive?’ He said, ‘Yes. They’re trying to get her stable.’ They wouldn’t let me go to the back yard. It seemed like forever and then they brought her to the front and put her in the ambulance. I yelled at her to fight like hell, and then we were on our way to the hospital. It wasn’t very long before they came out and said she didn’t make it. I said, ‘Can I see her?’ They let me see her, and when I looked at her I knew it was over for her. She suffered so much pain. Pain was a daily thing. The doctors didn’t take it as seriously as they could or should have.”

There was no funeral. Kristi had always said she wanted to be cremated. “I was with her every step of the way, I wasn’t going to let her go through that by herself,” Sherill said. “I’m not going to let her down now. I went down to Greenwood where they do it. I kissed her. I talked to her and then I watched as they took care of her.”

Sherill broke down in tears.

Her daughter killed herself 20 days after her husband died. Twenty days after her daughter’s suicide, Sherill had a dream. In it, Kristi was smiling, running, happy, free.

“That’s the one thing that’s kept me going because I know she’s not in pain anymore,” Sherill said, crying. “I’m just crying for myself now. I’m just so lonely I don’t know what to do with myself. I just don’t know what to do.”

What she has done, with her from her two sons, is have a fundraiser in Kristi’s memory, with the proceeds going to the Endometriosis Research Center.

“I wanted to help somebody else,” Sherill said. “So no one else has to live that way. I just want everybody to know how much pain she went through, how much she suffered, so this doesn’t happen to anybody else.”

To contact Sherill about the fundraiser, send an e-mail to endokristi@yahoo.com

BAD Period !

I only get my periods every 3 months due to the BCP but when it is time for my friend to rear its ugly head it comes to battle. I have horrible cramps pain which makes my whole body tense and feel outta wack. I am dizzy, unable to sleep, eat or walk. I have stabbing throbbing side pain that feel someone is ripping my insides and its almost a stretched out feeling. I haven’t slept in 3 days which by now my body is in a war on itself. I have been throwing up and the worst is having to pee WOW talk about the worst pain imaginable ! I forget what it feels like to be normal and have a normal pain free pee let alone a pain free day. I lay in the ball on my pain praying not to breathe since that action alone causes pain. I went for acupuncture which is my new form of pain relief and I admit though expensive after coming a few days the pain does decrease or go away. I am thankful for acupuncture and a new found pain free gift. I would recommend to anyone to try it and stick with it. Be open to new options even if its something strange and out there! I didn’t think it would work but truly believing in your body mind and spirit helps you achieve pain free days. Hope that you find something ne that helps you trough the tough days xo

My Battle

I was 12years old when I started my very heavy painful periods. I knew My pain was different from other girls because I had to take school days off and was unable to even get out of bed. I used to think maybe it was all in my had or that it was just normal for me. I tried all kinds of Birth Controls growing up but some were too many male hormones(too strong) Others gave me more hair growth and I still got my period every month. I really just dealt with the pain my whole teen years and only in the last few years in my 20s I started to research and take matters in my own hands. I saw many gyno doctors and they all seemed to treat me as a pill popper or It was again all in my head. I really felt alone and isolated. I knew my body was in war with itself but I had no idea why. I started to look up my symptoms online and I saw articles on the internet and stories on utube. I went to the doctors with this information in hand and said I think I have endometriosis. My new gyno said ok well take the Birth control pill for 3 months in a row then have 1 period. I thought wow that was easy if only I had thought of that myself, Could it really be that easy?

As time went on I did what the doctor ordered but the pain and symptoms seemed to get worse and stay way after my periods and weeks before I was due a period. I overlooked all my symptoms over the years emotional and physical. I realized there has to be more to this endo then I thought. 

A breakdown of my symptoms

Mood swings/ Depression/ anxiety / highs and lows/ snapping at my loved ones yelling for no reason at all then crying the next min. Extremely sensitive and then pushy and angry. I had days where I was so down and depressed I didn’t want to get out of bed. There was always a pattern in my moods always in and around ovulation and or due periods. I had heightened senses Smells, hearing, I could smell things in the next room !

I had days where I felt such lower back pain it made me crazy in my mind foggy and unclear.

I of course had lower pelvic right side pain, Near my pubic bone across to my side then my back, pain would go down to my leg into my foot making it hard to walk. Nausea was normal almost daily, low iron (also a vegetarian) unpredictable emotions (reactions)

I had the pain almost daily when I would go to the washroom both 1 and 2 lol were horribly painful and constipation was normal for me. Gas, bloating, hating the feeling of being full in my stomach began to hate food. Had instant Endo belly bloat after eating even the smallest thing. I have headaches, muscle pain stiffness, sciatica , extreme fatigue, I am tired all the time lack of energy, Have not been able to sleep my whole life a good 8 hours has never been apart of my night time schedule. I am restless anxious and a lot goes on in my head.

Painful sex and bleeding after intercourse, Times I feel my insides are falling out. I have constant UTI, bladder infections and yeast. I have stabbing pain after sex or during.

I sometimes have stabbing pain or pulling pain in my lower right side as if I am tearing the endo when I move in different positions.

I know what  I eat affects my body  I am vegetarian but not Vegan which I would like to try, I know I have a gluten allergy which seems to be common with us endo girls.

My period cramps are out of this world where I am in bed for 5 days throwing up from pain and in a ball with a heat pad. I bleed quite a bit and for at least 10 days.

I have seen specialists and they give me ty3 , oxycodone but nothing helps. I have had the opportunity to have a lap done but need to make sure its with the right doctor as I have had bad experiences in the past.    I continue to struggle but with support and courage I battle my symptoms almost daily. These are just a few of my symptoms maybe you have the same or different as it affects everyone differently but I hope you read this and maybe say hmm  it could be endo and talk to your doctor.