Hi. . . My Name is Endometriosis, and I’m an invisible chronic illness. I am now velcroed to you for life. Others around you can’t see me or hear me, but your body feels me. I can attack you anywhere and any way I please. I can cause severe pain or, if I’m in a good mood, I can just cause you digestive problems and fatigue. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. I can make you feel anxious or depressed, and I can make you catch every cold and sniffle that comes around. If you have something planned, or are looking forward to a great day, I can take that away, too. I hear you’re going to see a doctor who can get rid of me. I’m rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, hormones, told you are suffering from anxiety or depression, massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day. Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel. Some of them will say things like “Oh, you are just having a bad day” or “Well, remember, you can’t do the things you used to do 20 YEARS ago”, not hearing that you said 20 MONTHS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a “normal” person, and can’t remember what you were going to say next! In closing, (I was hoping that I kept this part a secret but I guess you already found out). . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Endometriosis
I may not know you well at all,I may not have even met you,I may not be blood related or even know your name but I am connected to you through this disease that will never go away.I am beside you when you need a friend,behind you when you need a push and in front of you when you need a little guidance.I am your ENDOSISTER AND WE FIGHT TOGETHER XO
I am never not in pain though I hide it well but its getting worse and I AM TIRED OF HIDING IT I may not be able to go out as often walk as long do certain activities i am sore all over like having the body flu 100 times worse you need to understand that just because i look ok on the outside my insides are all stuck together so sometimes going from sitting to standing causes a ripping an actually ripping try to imagine your bowels getting stretched or torn away from you belly button or pelvis or stomach. I have webs connecting my organs and simple twists and turns fast movements even going over bumps cause things to stretch and pull and tare. I feel everything more extreme hear things louder see things more smell things more feel things more, I get severe anxiety depression worry stress my mind even fights my body My body is a war within itself I am suffering alot neven. I cant do the things i love I cant go places cause i worry about pain, pain is my enemy and it rules my world right now. I am trapped in a broken body that fights me with even eating a simple food. I have to constantly be aware of my body what i feel will i feel am i going to be ok if i do this if i have a big day today i will have a bad day tomm is it worth it. I have to balance the pros and cons to everything its not as simple as getting dressed and going. I fluctuate in weight im bloated full heavy or no weight and thing and to thin everyday is a struggle im exhausted even when i wake up because imagine your body fighting a war every min of the day and night never getting a break can you imagine how tired your mind and body would be. I stress a lot worry a lot and having 0 communication and a horrible relationship on top of it is worse. I cant fight on top of fighting, I cant yell on top of screaming at my own body to move! I cant worry more than i already am I need someone who takes charge! I need someone to not pass judgment and make me feel bad about being sick or throwing it in my face I am really aware of things i am doing and unable to do
I know whats going on im living it
I know theres wasted money and wasted plans and time getting ready but that’s my life. I have spent countless hours getting ready and 15 min before I get sick or headache or i don’t feel pretty I feel fat!
I need someone to lift me up not drag me down
I don’t feel pretty perfect or attractive with a illness attacking my inner body ! WOULD YOU?
I feel not good enough and fat and bloated and my hair falls out
I need someone who doesn’t call me pet names and cute like im a baby and a sick baby at that it makes me feel less than and makes the endo win! I am not an Endo BABY I am a warrior !
I sometimes don’t want to tell you i am sick I thought you know that I thought you see small glimpses into the pain and know that its there daily
I thought you know I have endo and its chronic pain
Look up what chronic means
I don’t want to tell you I don’t feel well to hear we paid we traveled were losing out and fight over endo cause than it wins I just suck it up but that’s not fair you see my hands sweat you have to see the signs of pain my body lanuguage will tell you
Your so busy looking out into the world your world you don’t actually see me you see my boobs my make up my body but not really ME
You see my smile my laugh but not my silent cries
You think everything is fine but how could it be I have endo
Its not going away its actually getting worse
I cannot fight and battle I already do that and have been since i was 12 years old …
I need a relationship that is strong supportive
if we were one a strong couple one unit we wouldn’t fight over the dum things we fight over if we were one body one soul you wouldn’t push me because you would feel what I feel
WE are not those things and that is why this happens
we are two strangers
living 2 worlds
stop being a child for once in your life this is above you and you cannot fix me you cannot write anything that makes your point there is no point there are times in life when and if you know nothing about something you need to shut up and listen
you dont listen I have been fair I have told you all these important things and all i ask is you to read them
stoppppppppppppppppppp (he is typing as I am typing clearly not reading what I am writing)
wait until I am done so you fully get what I am saying
dont waste my time with you who cant handle this and let me find someone who can
This is your last fucking chance I have told you about endo sent articles wrote what you could do
this is hopeless
ill talk to you later when you want to listen instead of beat me with this too
I feel defeated as I am typing trying to express myself and tell him ways to help me he is typing away as well so were both typing him to probably defeated his actions instead of listening to me. Or trying to beat me to the punch since I guess he has endometriosis too so he knows what to say.
I have sent articles, clippings, stories, If he doesn’t know about what Endometriosis is then he is not listening is just a boy or his life take care of everything so he can do what he does best which is nothing… I have never met someone so self absorbed so lazy unmotivated such a boy!
You need to go back to the life you had before me smoking pot drinking and letting mommy and daddy do all the work!
I have decided to start a Endometriosis Support Group Peel For Ontario Mississauga and surrounding area. I open my home to welcome you to share,relax,and support ladies fighting this horrible disease Endometriosis. We meet Bi weekly at 7 pm. Find us on facebook Endometriosis Support Group Peel . Or send me a mesg here to join.
This is a very good video
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PARKVILLE, Mo. — Millions of younger women have a disease that can be painful, depressing and even debilitating. It’s called endometriosis, and it often goes undiagnosed because women think their pain is just a normal part of having periods.
Sheena Ivy of Parkville had symptoms of endometriosis for years before she was diagnosed.
“It would just hurt so bad that I would vomit. So sometimes I would shake. Sometimes I would get just really, really sick,” Ivy said, referring to the symptoms she would have with her menstrual cycle.
With endometriosis, tissue that normally lines the uterus grows elsewhere causing inflammation, scar tissue and adhesions.
“So it affected my bladder and then also affected my bowels. So when I had the surgery for endometriosis, my ovaries were sealed to the sides of my abdomen, my fallopian tubes were completely blocked, and I actually had it on my…
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Chronic Pain Harms The Brain
People with unrelenting pain don’t only suffer from the non-stop sensation of throbbing pain. They also have trouble sleeping, are often depressed, anxious and even have difficulty making simple decisions.
In a new study, investigators at Northwestern University’s Feinberg School of Medicine have identified a clue that may explain how suffering long-term pain could trigger these other pain-related symptoms.
Researchers found that in a healthy brain all the regions exist in a state of equilibrium. When one region is active, the others quiet down. But in people with chronic pain, a front region of the cortex mostly associated with emotion “never shuts up,” said Dante Chialvo, lead author and associate research professor of physiology at the Feinberg School. “The areas that are affected fail to deactivate when they should.”
They are stuck on full throttle, wearing out neurons and altering their connections to each other.
This is the first demonstration of brain disturbances in chronic pain patients not directly related to the sensation of pain.
Chialvo and colleagues used functional magnetic resonance imaging (fMRI) to scan the brains of people with chronic low back pain and a group of pain-free volunteers while both groups were tracking a moving bar on a computer screen. The study showed the pain sufferers performed the task well but “at the expense of using their brain differently than the pain-free group,” Chialvo said.
When certain parts of the cortex were activated in the pain-free group, some others were deactivated, maintaining a cooperative equilibrium between the regions. This equilibrium also is known as the resting state network of the brain. In the chronic pain group, however, one of the nodes of this network did not quiet down as it did in the pain-free subjects.
This constant firing of neurons in these regions of the brain could cause permanent damage, Chialvo said. “We know when neurons fire too much they may change their connections with other neurons and or even die because they can’t sustain high activity for so long,” he explained.
‘If you are a chronic pain patient, you have pain 24 hours a day, seven days a week, every minute of your life,” Chialvo said. “That permanent perception of pain in your brain makes these areas in your brain continuously active. This continuous dysfunction in the equilibrium of the brain can change the wiring forever and could hurt the brain.”
Chialvo hypothesized the subsequent changes in wiring “may make it harder for you to make a decision or be in a good mood to get up in the morning. It could be that pain produces depression and the other reported abnormalities because it disturbs the balance of the brain as a whole.”
He said his findings show it is essential to study new approaches to treat patients not just to control their pain but also to evaluate and prevent the dysfunction that may be generated in the brain by the chronic pain.
The study will be published Feb. 6 in The Journal of Neuroscience. Chialvo’s collaborators in this project are Marwan Baliki, a graduate student; Paul Geha, a post-doctoral fellow, and Vania Apkarian, professor of physiology and of anesthesiology, all at the Feinberg School.
WAS READY TO GO OUT BUT OF COURSE ENDO WINS AND THIS IS THE UGLY SIDE OF THE DISEASE